Library

Traditionally, responsibility for providing care in the home for people with serious illness has fallen to women as wives, mothers, or daughters of the afflicted individual. Among the many societal repercussions of the HIV/AIDS epidemic has been the creation of a new group of caregivers—gay men who are the primary caregivers for their partners with AIDS. In the 1980s and early 1990s, before the advent of protease inhibitors and the new antiretroviral treatments, AIDS was a pernicious, essentially uncontrollable terminal illness that manifested horrendous opportunistic infections. Caregiving during this period was challenging at every level: emotional, psychological, physical, and even spiritual. The tasks were daunting, highly stressful, and unremitting. The only predictable aspect of the disease was that it would claim its victim sooner rather than later. How could these caregivers, many of whom were themselves infected with HIV, maintain their own sanity, and for those who were HIV+, sustain their own physical health, while facing the extraordinary challenges of AIDS caregiving? These were the questions that led us to design a study about this new group of caregivers. We felt that there was a great deal these men could teach us about coping with profound psychological stress that would help other AIDS caregivers as well as anyone who was faced with the profound stress of caring for someone with a serious illness.

CAPS/UCSF PRC leading PrEP research!

Welcome to our new quarterly e-newsletter! This issue focuses on PrEP or pre-exposure prophylaxis. Read about our work on PrEP uptake and implementation in Oakland, Sacramento, San Francisco, Texas, and internationally. There are also CAPS updates to share, so take a look! In this issue:

1. The Trans Community and PrEP
2. Local black MSM and PrEP Access
3. Black MSM in TX and PrEP Use
4. iPrex Open Label Extension
5. International HIV/STI Programs for Transgender People
6. CAPS Technical Assistance
7. Mpowerment Summit 2016
8. Updates

Working Together: A Guide to Collaborative Research in HIV Prevention is for service providers, researchers and funders who are interested in working on a collaborative research project. It provides a wealth of information drawn from research and years of experience and is full of hands-on, practical strategies for successful collaboration. Working Together outlines a step-by-step process for collaborative research from conceptualizing a research question to analyzing data to disseminating research findings.

This cyber-seminar will highlight three of the R2R Mentorship Program projects that are working with community partners to adapt and implement evidence-based interventions.  Kiameesha Evans is adapting and implementing the diet and nutrition program, Body and Soul, to include a physical activity component and is piloting the intervention with several faith-based organizations in New Jersey.  Venice Haynes has partnered with a local foundation to provide technical assistance in the adaptation of a cervical cancer program, Con Amor Aprendemos (With Love We Learn), for African American faith-based communities in Atlanta. Finally, Charlene Mitchell adapted a sun safety program, Pool Cool, for implementation at rural Idaho public pools.  Kiameesha, Venice, and Charlene will each share an overview of their projects, outcomes, and lessons learned about partnership, adaptation, and implementation relevant to other communities and researchers interested in these types of cancer control interventions.